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To
view a particular article, please click on the blue title from the
list below.
Update on CBGD: Bradley F. Boeve,
MD.
Glossary: Geri Hall, PhD ARNP, CNS.
Hospice
Estate Planning: Tom Mills,CFP,ChFC
Legal Considerations: Kevin P. McFadden,
JD.
There
is a terrific book that covers the caregivers attitude and philosophy.
Your Name is Hughes Hannibal Shanks by Lela Knox Shanks
is a caregivers guide to Alzheimer’s. Although the requirements
of caregiving for CBGD patients is far different than Alzheimer’s
and their symptoms are far different, the book is well worth reading
for the humaness, intellectual insight and the real reason for personalized
caregiving. I highly commend this book for your intimate knowledge
of the real meaning of caregiving. It is available at your public
library or local bookstore. If they don’t have it, either can
surely get it for you.
IT IS NECESSARY FOR US, THE PATIENTS AND CAREGIVERS, TO UNDERSTAND
WHAT OUR DOCTORS, THE MEDICAL PROFESSION, ARE UP AGAINST AND WHAT
THEY ARE TRYING TO ACCOMPLISH SO THAT WE CAN JOIN THEM IN THIS BATTLE
TO LICK THESE INCURABLE BRAIN DISEASES. WE MUST FACE UP TO TASKS
AND PROCEDURES THAT IN THE PAST HAD SEEMED INTOLERABLE.
This leads into a subject that is difficult, not only to think about,
but very difficult to write about. “AUTOPSY.” Implied
in all of our communications is the advancement of knowledge that
will eventually lead to the prevention and cure of CBGD. For sufferers
of CBGD who succumb, arrangements should be made to have the brain
donated to some medical research institution for study and research
in furtherance of our goal. Arrangements prior to death should be
made through your physician.
Alan G.
McIlvaine
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