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  Features and Glossary
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Update on CBGD: Bradley F. Boeve, MD.

Glossary: Geri Hall, PhD ARNP, CNS.

Hospice

Estate Planning: Tom Mills,CFP,ChFC

Legal Considerations: Kevin P. McFadden, JD.



There is a terrific book that covers the caregivers attitude and philosophy. Your Name is Hughes Hannibal Shanks by Lela Knox Shanks is a caregivers guide to Alzheimer’s. Although the requirements of caregiving for CBGD patients is far different than Alzheimer’s and their symptoms are far different, the book is well worth reading for the humaness, intellectual insight and the real reason for personalized caregiving. I highly commend this book for your intimate knowledge of the real meaning of caregiving. It is available at your public library or local bookstore. If they don’t have it, either can surely get it for you.


IT IS NECESSARY FOR US, THE PATIENTS AND CAREGIVERS, TO UNDERSTAND WHAT OUR DOCTORS, THE MEDICAL PROFESSION, ARE UP AGAINST AND WHAT THEY ARE TRYING TO ACCOMPLISH SO THAT WE CAN JOIN THEM IN THIS BATTLE TO LICK THESE INCURABLE BRAIN DISEASES. WE MUST FACE UP TO TASKS AND PROCEDURES THAT IN THE PAST HAD SEEMED INTOLERABLE.


This leads into a subject that is difficult, not only to think about, but very difficult to write about. “AUTOPSY.” Implied in all of our communications is the advancement of knowledge that will eventually lead to the prevention and cure of CBGD. For sufferers of CBGD who succumb, arrangements should be made to have the brain donated to some medical research institution for study and research in furtherance of our goal. Arrangements prior to death should be made through your physician.

Alan G. McIlvaine